well, for me the reaction is fast now.
It used to be hours or a day or more.
Now, if I touch it, I begin itching. If I put it in my mouth, it is like unto a reaction to food allergens like tongue swelling or mouth sores... that kind of thing.
I'd say it's moved so fast to minutes.
I didn't think to ask about the spices/salt that is put on fries at the Turkish Döner places in Switzerland and Germany because I knew the meat was ok and the fries GF... and not but a few minutes after I had ingested in June, I got to turning pale (I could feel it) and really sick. I had to beg DH to find a bathroom and fast, and I wasn't being choosy.. We crashed a restaurant next door and he ordered a soda. I have no idea how long I was in there, but it seemed like hours. Then we walked to the hotel. I thought I would ne'er make it.... and got the urge again.
and the only bathroom was a public pay one at the tram pickup area about half way.. I got my money's worth and had to figure out how to use it all at once while hovering... there was a water problem (plus rain had gotten in) so nothing one did helped. I think the time limit in there was 10 minutes and by the time I made it out, there was a long line...
DH had to practically carry me to the hotel from then, and I spent time between the bed laying flat with a cold washrag on my forehead and wrists, and running alternately to our bathroom.
And we couldn't figure out what it was to save our lives, until I sat down and began writing down everything we'd eaten
and Döner was the only difference!
it took about a month to begin bouncing back... August was when I started feeling better but wasn't quite "Up to speed" - and that is when my hands decided to manifest any time I was in contact with gluten, whether I ate it or touched it or whatever. I also noticed my acne comes back with a vengeance when I am in contact with Gluten...
I found if I smell glutenous products in a bakery, sometimes that can cause me a reaction - and I have gotten semi paranoid about touching surfaces in stores that have bakeries (like, 99.9% of food related grocery stores here in Germany), and I have considered getting gloves to assist.
The biggest issue is that my inlaws eat around the coffee table, so little crumbs can be found in the furniture or on the coffee table when I least expect it - and the only cream that was helping when I had reactions has a steroid, which is off limits now that I am pregnant.
My sister and dad also react "within seconds/minutes" but they have been on the diet longer than I have 'full time'.
This can't even compare to a "normal flu" (the kind that can last two weeks), it compares closer to Mononucleosis with me.... kicks me for a loop for about a month and then has long lasting effects.
It has really thrown a monkey wrench into my memory, as far as what I can remember, long term and short term, and once I have been glutened I am tired all the time (
), grouchy (pms x3), and don't even want to be around people...
What it does to my intestines is so not fun. After I am sick, it feels like I have been cleaned out with sandpaper on my insides... Belching is the least of my worries. LOL, I get the icky farts to be honest; and my BM is like lead. (hope that isn't tmi) it takes a loooooong time for my gut to recover. I think it took about 3 months for things to be normal in that department like the DRs generally want to see and as far as regularity. As far as "the rumblings".. oh my.. that takes almost as long to get rid of... it's one way I know when I have gotten into something really bad, because "Normal rumblings" sound different and move differently.
What kills me though, is this is so rampant on my mom's side of the family and everyone writes it off as "(Family surname) Bellyaches"... and go no further. I am afraid for my youngest aunt and the cousin that is closest to my age. The Drs diagnosed "IBS" and has them on a medication, but did not persue it further and their intestines are in such bad shape.
One thing I've noticed, we in the Celiac community seem to be the most open society (other than Germans) about discussing bathroom issues